Understanding the profound effect that clarity in roles and responsibilities will have, our policies and procedures are designed to influence and determine major decisions and actions, and all activities of the organization.
Our procedures and operating manuals provide specific methods to express policies in action in the day-to-day operations of the organization.
Below are a few policies and procedures guiding the operations of SCAGO
Working Together Towards a Cure for Sickle Cell Disease
Since 2006; SCAGO has relied on the wisdom of its advisory board of directors. This board was first chaired by Dr. Isaac Odame. Mr. John Adams moved to the role of the chair of the advisory board in 2007 and remain the chair till present.
Members of the Advisory Board of Directors
Optimize the lives of individuals and families living with Sickle Cell Disease (SCD). This is part of a broader vision for every Ontarian with SCD to have equal and equitable access to comprehensive, standard care regardless of place of residence in the province.
1. To educate the general public about sickle cell disease (SCD) and sickle cell trait (SCT).
Activity to Accomplish Mission
By providing public seminars, forums, in- school lectures, religious places presentations, law-enforcement education, etc.
2. To provide support for patients and families with SCD
Activity to Accomplish Mission
By organizing support groups, clubs, etc.
3. To alleviate poverty for patients and families with SCD
Activity to Accomplish Mission
By providing and administering emergency grants, scholarships, and other financial aids.
4. To provide a better understanding/knowledge of the disease to individuals with sickle cell disease and their families
Activity to Accomplish Mission
By providing Learning for Life TM (LFL) educational sessions to improve management of the disease.
5. To contribute to the educational advancement of students with SCD
Activity to Accomplish Mission
By providing scholarships and grants.
6. To improve care and treatment received by individuals with SCD
Activity to Accomplish Mission
A. By advocating on behalf of patients, for life-saving drugs and treatments,
B. By providing education to the medical and allied health professionals on the subject of SCD,
C. By supporting sickle cell research,
D. By organizing Lunch and Learns (L&L) in the local hospitals.
Patients and Families come first at SCAGO and as such we EMPLOY the core values below:
S: Support patient and family-centered approach to the planning & delivery of our services.
C: Committed to improving our services to our constituents.
A: Accountable for our services, resources, and behaviors.
G: Gain recognition as the provincial voice for sickle cell disease
O: Openness and transparency in our services
Transitioning from pediatric to adult care is a process that demands a lot of planning and open communication. While we appreciate the work of the hospital teams and the families in explaining the process and guiding the young people in this journey, SCAGO is pleased to provide an educational platform that brings together the SickKids (pediatric), Toronto General Hospital (adult), and other medical & allied health professionals along with the young adults transitioning, their families and the patient associations.
STROKES IN SCD
Dr. Kevin Kuo is an adult hematologist at Toronto General Hospital. He has given many hours to patient education. He provided in-depth teaching on Strokes in Sickle Cell Disease to both the Medical and the patient community.
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