The Videos

Official Opening and Welcome / MP and MPP Welcome | Sickle Cell Summit 2026

Watch Official Opening and Welcome / MP and MPP Welcome, from Day 1 of the 6th Annual Sickle Cell Summit 2026, moderated by Lanre Tunji-Ajayi.

Speakers:
Tom Rakocevic
Delaney Hines
Mr. Illiayasu

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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Modernizing SCD Care – Re-imagining the Treatment Model | Sickle Cell Summit 2026

Watch Modernizing SCD Care – Re-imagining the Treatment Model from Crises Intervention to Health Maintenance, from Day 1 of the 6th Annual Sickle Cell Summit 2026, moderated by Delaney Hines.

Speaker:
Dr. Patrick Hines

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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Hydroxyurea, Transfusion, and Beyond: Treatment Decisions in Sickle Cell Disease

Watch Hydroxyurea, Transfusion, and Beyond: Treatment Decisions in Sickle Cell Disease, from Day 1 of the 6th Annual Sickle Cell Summit 2026, moderated by Dr. Donnell Ivy.

Speakers:
Dr. Robert Klaassen - Optimizing Disease-Modifying Therapy in Sickle Cell Disease: When to Use Hydroxyurea, Chronic Transfusion, and Emerging Treatment Strategies
Dr. Robert Johnson - Managing Iron Overload in Sickle Cell Disease: Monitoring, Chelation Therapy, and Improving Long-Term Outcomes
Daniel Adesina - Shared Decision-Making in Sickle Cell Disease: The Patient Experience in Communication, Adherence, and Partnering with the Healthcare Team

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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Advancing Patient-Centred Advocacy and Care | Sickle Cell Summit 2026

Watch Advancing Patient-Centred Advocacy and Care, from Day 1 of the 6th Annual Sickle Cell Summit 2026, moderated by Tanya Elese.

Panelists:
Maja Turkovic & Dr. Sandra Newton - The Patient Wellbeing Coordinator Program in the Healthcare System: A Case Study of London Health Sciences Centre
Fitz-Ann Howell & Earleen Dover - Advancing Sickle Cell Care: The Role of SCAGO's Patient Advisory & Advocacy Council (PAAC)

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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Renal and Pulmonary Hypertension – Complications in Sickle Cell Disease | Sickle Cell Summit 2026

Watch Renal and Pulmonary Hypertension – Complications in Sickle Cell Disease, from Day 1 of the 6th Annual Sickle Cell Summit 2026, moderated by Dr. Dana Powell.

Panelists:
Dr. Andrea Cervi - Beyond Pain: Understanding Multisystem Involvement in Sickle Cell Disease
Dr. Melanie Kirby-Allen - Pulmonary Hypertension Pathophysiology in Sickle Cell Disease
Dr. Donnell Ivy - Living with Renal Complications in Sickle Cell Disease

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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The Role of Lived Experience in Shaping Inclusive Healthcare Policies | Sickle Cell Summit 2026

Watch The Role of Lived Experience in Shaping Inclusive Healthcare Policies, from Day 1 of the 6th Annual Sickle Cell Summit 2026, moderated by Tanya Elese.

Panelists:
Fitz-Ann Howell - Integrating Patient-Reported Outcomes into Care Planning: The Hospital Experience Reporting Portal (HERP)
Rugi Jalloh - Bringing the CBS Lens and Patient Advocacy: Advocating for Inclusive Blood Donation Practices

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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Research Abstract – Oral Presentations | Sickle Cell Summit 2026

Watch Research Abstract – Oral Presentations, from Day 1 of the 6th Annual Sickle Cell Summit 2026, moderated by Dr. Dana Powell.

Presenters:
Beatrice Floris - Is the Edmonton Symptom Assessment Scale (ESAS) an effective symptom assessment tool in adult patients with sickle cell disease in a comprehensive hemoglobinopathy clinic?
Valerie Jansen - Improving Equity in Pediatric Sickle Cell Disease Emergency Care
Tanya Louca - Evidence2Practice Sickle Cell Disease Vaso-Occlusive Pain Episode Emergency Department Toolkit
Marnie Cornett, Jasmine Montagnese & Dr. Sandra Newton - Partnering for Better Care: Development of Sickle Cell Disease Specific Chronic Pain Programming
Karen Fleming - Co-Creating Culturally Affirming Sickle Cell Disease Services Through Community-Hospital Partnership in Durham Region

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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Opening and Welcome | Sickle Cell Summit 2026

Watch Opening and Welcome, from Day 2 of the 6th Annual Sickle Cell Summit 2026, moderated by Delaney Hines.

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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From Innovation to Impact: Centering Lived Experience to Transform the Sickle Cell Care Journey

Watch From Innovation to Impact: Centering Lived Experience to Transform the Sickle Cell Care Journey, from Day 2 of the 6th Annual Sickle Cell Summit 2026.

Speaker:
Dr. Titi Fasipe

Presented by the Sickle Cell Awareness Group of Ontario (SCAGO).
Learn more: https://www.sicklecellanemia.ca

Sponsored by Novo Nordisk and Vertex.

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