The Videos

LFL-Accessing CASGEVY as a Curative Therapy in Canada

This Learning For Life webinar discussed the limited availability of therapies for sickle cell disease in Canada and the potential benefits and risks of stem cell transplant and gene therapy. The panelists, including a hematologist, a transplant recipient, and a patient advocate, shared their experiences and insights on the treatment options, emphasizing the importance of patient advocacy and the need for more treatment options. The discussion also covered the various costs associated with gene therapy, the regulatory approval process in Canada, and the importance of patient voice in treatment options and policy formulation.

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Sickle Cell Disease in the Community: Sickle Cell Basics

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Sickle Cell Disease in the Community: Strategies to Effectively Conduct Outreach in Sickle Cell

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L4L Session: Sickle Cell Disease Complications including Stroke

Gain valuable insights into preventing complications of Sickle Cell Disease and improving health outcomes. This session contains essential knowledge to manage and mitigate risks associated with sickle cell disease, including the risk of stroke.

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Patient & Community Track: Fertility when living with SCD: Exploring IVF and other options- Part 2

Patient/Community Track: Fertility when living with SCD: Exploring IVF and other options
Speaker: Dr. Kristine Matusiak MBBS, FRCPC
Moderator: Dr. Dana Powell

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Patient/Community Track: Living Longer with Sickle Cell Disease - What Families Need to Know

Living Longer with Sickle Cell Disease - What Families Need to Know
-Living into the 70s and Beyond with Sickle Cell Disease
-Working with the Healthcare team in Ensuring Optimal Health Outcomes for People with Sickle Cell Disease
-Pediatric-Adulthood: Must-Have Strategies for Living Longer with Sickle Cell Disease

Speakers: Sherman Moore, Erin Burrell RN,BScN, CpedN(C), Dr. Melanie Kirby-Allen
Moderator: Sarah Rashid

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Patient & Community Track: Fertility when living with SCD: Exploring IVF and other options- Part 1

Patient/Community Track: Fertility when living with SCD: Exploring IVF and other options
-Exploring IVF and Other Fertility Options
Speaker: Dr. Kristine Matusiak MBBS, FRCPC
Moderator: Dr. Dana Powell

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Patient/Community Track: Strategies for Effective Parenting of Children with Sickle Cell Disease-Pt2

Patient/Community Track
Panel Discussion: Strategies for Effective Parenting of Children Living with Sickle Cell Disease
-Sharing an English-Canadian's parent's experience
-Sharing a franco-phone parent's experience in parenting
-Effective communication strategies for parenting
-Sharing a peer's experience growing with sickle cell disease

Closing Remark

Speakers: Mary Oduwole, Tanya Elese, Dr. Sandra Newton, Bethany Morris RECE, BA
Moderator: Karen Fleming

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Patient/Community Track: Strategies for Effective Parenting of Children with Sickle Cell Disease-Pt1

Patient/Community Track
Panel Discussion: Strategies for Effective Parenting of Children Living with Sickle Cell Disease
-Sharing an English-Canadian's parent's experience
-Sharing a franco-phone parent's experience in parenting
-Effective communication strategies for parenting
-Sharing a peer's experience growing with sickle cell disease

Speakers: Mary Oduwole, Tanya Elese, Dr. Sandra Newton, Bethany Morris RECE, BA
Moderator: Karen Fleming

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