The Videos

Clinician Track: Spotting and Treating Acute Chest Syndrome & Pulmonary Hypertension Effectively

Session Objectives:
1. Recognize early clinical and radiologic signs of acute chest syndrome and PH.
2. Initiate appropriate acute and long-term management strategies.
3. Evaluate patients for PH risk and refer for specialized care as needed.

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What’s Hot in Cell and Gene Therapy: Which Should I recommend and when?

Session Objectives:
1. Educate providers on eligibility and patient selection for new therapies.
2. Provide clinical support tools to assist in therapy recommendation decisions.
3. Support post-marketing research on safety and efficacy.

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Opening & Welcome

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Patient Track: Future Innovation in Patient Pain Management for Sickle Cell Disease

Session Objectives:
1. Evaluate emerging pharmacologic and non-pharmacologic innovations in pain management for SCD.
2. Investigate novel therapies and integrative approaches for managing pain in SCD.
3. Collaborate with interdisciplinary teams to implement evidence-based, patient-centred pain protocols.

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Plenary Session: Health Care Providers and Community as Partners in Advancing SCD Care and Treatment

Session Objectives:
1. Develop frameworks that support community-clinical partnerships in SCD care.
2. Allocate resources to programs co-designed with patients and families.
3. Measure the impact of community engagement on patient retention and outcomes.

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Keynote Address: Advancements and Advocacy in the Management of Sickle Cell Disease

Session Objectives:
1. Evaluate recent clinical advancements in SCD therapies and their integration into medical practice.
2. Interpret the impact of advocacy on clinical guidelines and patient access to care.
3. Identify emerging challenges in disease management and propose clinician-driven policy improvements.

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Clinician Session-Alloimmunization and Hyperhemolysis in SCD

Session Objectives:
1. Identify patients at high risk for alloimmunization and hyperhemolysis.
2. Apply transfusion protocols that reduce immunologic complications.
3. Manage acute hyperhemolysis episodes using current clinical guidelines.

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Equity and Inclusion in Blood Donation

Session Objectives:
1. Support policies that promote equity in blood donation recruitment and access.
2. Collaborate with community organizations to improve donor diversity.
3. Monitor equity metrics in transfusion practices.

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Creating a Connected World for Sickle Cell Registries & Community Strategies to Advance Care

Keynote address by Dr. Julie Kanter

Session Objectives:
1. Describe the clinical utility of national and international SCD registries in improving care outcomes.
2. Engage in communities of practice to share data and refine clinical decision-making.
3. Identify how integrated systems improve care continuity and patient monitoring.

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