Name of Study: iCanCope with Sickle Cell Pain
Brief Summary: The project will test a tailored web and smartphone-based application (iCanCope with SCD) to improve pain self-management and functioning in youth (aged 12-18) with sickle cell disease. The program will include goal setting, peer-based social support, and pain self-management training. The investigators will determine initial program effectiveness through a pilot three-site randomized controlled trial in 160 youth randomized to treatment compared to attention control.
Intervention: Educational and Pain Self-management
Age range: 12-18yr
Inclusion Criteria:
- aged between 12-18 years
- diagnosed with any type of SCD
- able to speak and read English
- score at least 4 (indicating some days with pain interference over the past month) on the Sickle Cell Pain Burden Interview
- willing and able to complete online measures
Exclusion Criteria:
- significant cognitive limitations that would impair their ability to use and understand the iCanCope with SCD program, as per their health care provider or parent
- have previously received more than 4 sessions of outpatient psychological therapy for pain management in the 6 months prior to the time of screening.
Site in Ontario: The Hospital for Sick Children, Toronto, ON
Contact: Jennifer Stinson Ph.D. Email: jennifer.stinson@sickkids.ca
Status: Recruiting
Click here for more information
Source: clinical trials.gov Identifier #: NCT03201874
Last updated: May 31st, 2018